I was diagnosed in 1999, before the advent of TKI therapy but was fortunate enough to enter the Phase II trial of Imatinib. I set up CML Support in 2000 and the experience of helping other people has certainly helped me and my family cope with what is a lifelong diagnosis.
After I was diagnosed, I scoured the internet for answers to all my questions. By far the richest source of information and help was CML Support. The advice from members has proved invaluable ever since. I really don't know what I would have done without them.
I was diagnosed 11 years ago and have found it very helpful to visit and learn from CML Support. It has been very helpful and informative and I recommend it to any newly-diagnosed patients.