In the early days, the CML Support community helped explain my illness, armed me with knowledge so I could better talk to my doctor and provided a compassionate place to share my problems. Outside of family, it continues to provide me my single biggest support through my CML journey.
I was diagnosed in 1999, before the advent of TKI therapy but was fortunate enough to enter the Phase II trial of Imatinib. I set up CML Support in 2000 and the experience of helping other people has certainly helped me and my family cope with what is a lifelong diagnosis.
I have found the cml support group invaluable. All the questions (including those I'd never thought of) and answers are there. It is so encouraging to know other people have similar experiences of living with cml, and the diagnosis is not the end of the world.