Just got the latest BCR/ABL-1 (etc) results back : .008 :(
May of this year: .161
August 22nd : 0.000 Undetected.
Nov 26th: .008
Still waiting for the FISH Test Results also from Nov 26th.
No Medicine change per my Oncologist : I will still be on the 50MG daily of Sprycel - next testing Feb 2019.
* WBC count is 8,100.
All the BEST TO ALL!
Chuck.
No need for the sad face! 0.008% is only 8 in 100,000 ... hardly anything and statistically bloody similar to 0 really.
I never trust undetectable results anyway. I got one myself once, then a more normal result the next time. A clerical error I reckon.
With a very low result like yours, you at least know the test is working and it's specificity.
*FISH Results from NOV- 2018- 0.000 Not Detected.
Chest X-Ray- no fluid in lower right lung- All Clear.
No Plural Effusion.
Latest Results from this past Monday- Feb 18th 2019
ABL-BCR 1 (IS) 0.000 Not detected.
WBC- 7,900.
RBC- 4.49.
Platelets- 225 Thousand.
Waiting for FISH Results - will post when received.
Just contending with side-effects of the sprycel : shortness of breath and tiredness.
All the best to all,
Chuck.
FYI : 50 MG. of Sprycel Daily.
Just back from my Oncologist : Dr. Waina Cheng , Sparta New Jersey. (USA).
She is very happy with my blood test results, achieving MMR!
Diagnosed with CML Feb 12 2018 @ 100.00 and now- Feb 22, 2019- 0.000 Not Detected.
Keeping me on 50 mg of Sprycel- still not willing to lower it to 20 MG daily for fear of a possible mutation and becoming immune to Sprycel.
Staying the course and new blood work in May.
All the best to all!
Chuck.
