I was diagnosed aug 6. Very scary. My wbc was 18.000. ( I thought just infection somewhere). Started gleevec 2 weeks later and my wbc is already down to 14,000 after 2 weeks. Yay. My question- 2 weeks before I found out, my scalp had bumps and itching. Still does only itching dri ING me crazy. Is this normal? Should I see a dermatologist? Thank you everyone. This site helps a lot.
You are here
Bumps and severe itchy scalp.
You’ll be fine your wbc is very low at diagnosis mine was 330!
When I started tki Nilotinib I had exactly that. Itchy scalp and sensitive and small bumps/spots over the body. They went about 3 weeks after starting. I’ve been on tki for 5 months and have no symptoms anymore. I am sure you’ll be the same.
Its a scary time for sure but you’re already responding so that’s great.
Best wishes
Alex
I had that. It was awful. I got several growths under my hair.
On my scalp. I could feel them.
Some of them shed skin all of then itched.
My hair thinned out. Not that I lost hair, my hair shaft thinned out.
I have the same amount of hair it’s just thin hair.
It also changed to a lighter color.
I was told that TKI’s attack cells with fast renew life cycles.
Hair cells fit this target.
Romo
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David.
David congratulations and best wishes to all of you. A friend of mine had a very premature baby we were all very worried about some years ago. That "baby" is now doing research in animal cancer at Liverpool University. Good luck.
My scalp itch and discomfort was from treatment.
I can only tell you what I did.
I cut off all my hair. To a buzz-cut. This helped my scalp to breath.
A hair dresser friend of mine suggested that I use a Clarifying Shampoo.
This strips all oil from the hair and scalp.
It’s for oily hair.
I didn’t have oily hair. But it did give me some relief.
I do it to this day. Of course my hair looks like a ‘ Russian Winter Hat without the hat..
People ask me “What did you do to your hair?”
It’s one of those things that I gloss over in social conversation.
My scalp is not so bothersome now.
Romo
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