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Natural cures for CML/Blast Crisis

Hello everybody

May I introduce myself as a husband who lost his beautiful wife 'F' to CML at the end of August?

It's also hard as it's just been her birthday and today would've been our wedding anniversary.

I am also a single parent now to three teenagers.

In brief, F was diagnosed at the end of January with CML and a blast cell count of 22%. We had no idea as the only symptom was an enlarged spleen.

Three courses of chemo followed as well as a stem cell transplant. At first all went very well indeed but then F developed acute gut GVHD. Her doctors tried everything but eventually she had to move to palliative care.

From diagnosis to death was seven months and three days.

My real point is this, F hated conventional medicine and the large drug companies and very much wanted natural cures. She couldn't find anything really online and we were told in January that without chemo she had eight weeks at most. So she went down the NHS conventional route.

I should say that F was very fit and healthy with an interest in a good diet and lifestyle.

I presume there are no natural cures for CML,with or without a blast crisis?

Thank you for your time.

Hi thanks for your posts. I'm extremely sorry to hear about your loss. F sounds like a wonderful person. It reminds those of us who are fortunate enough to have a good prognosis that we really are lucky to be doing well despite having what is for some a life threatening condition.

There are regular discussions on here about supplements etc., but these are mainly around minimising the side effects of the various TKIs which have saved many lives. Curcumin and vitamin D are discussed regularly, and others will be able to tell you the reasons for that better than I can.

Best wishes

Alastair

Thanks, Alastair.

 

It's a comfort to me to know we did all we could.

So very sorry for you. 

Keep breathing. You did everything right.

Take care of your children. You must be strong now, for them.

So sorry for your loss.  CML in blast crisis is incredibly hard to treat at this time, even after successful SCT it can come back.  

 

With current technology, that was the only route to take, there are medications being developed to treat CML blast crisis (https://www.news-medical.net/news/20170517/Researchers-identify-new-drug...) which puts the person back into chronic phase.  Also, immunotherapy will be the real cure for all of these cancers but we are still in an infant stage there.  

 

Don't believe in any of those natural "cures", typically these are snake oil salesmen trying to make a buck.  

 

Don’t believe the hype – 10 persistent cancer myths debunked

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